And, chances
are,
they/you
may not even know it...
Ok, I'm
NOT a Doctor!
I don't even play one on TV
!
In fact, I usually fell asleep in high school biology class because I couldn't stand it! All of this talk of mitosis and protoplasm and such. Too much uncertainty and too much gore for me! So I became an engineer and deal in "hard", "clean" facts.... No gooshy slimy stuff for me!
But, boy, do I wish I had paid attention in biology
class so I could communicate easier with my first wife's doctors when, at
the way-too-young age of 35, she was diagnosed with breast cancer....
Then, 2 years later when my MOTHER was diagnosed
with breast cancer.
Not to mention my GRANDMOTHER, a 20 year breast
cancer survivor.
Anyway, I've managed to collect a bunch of (useful?) (and, by no means comprehensive set of) cancer links. I can't vouch for any info in these files so use at your own risk! Some of the links need to be reclassifed. And links are shown in no particular order. I'll get around to making everything look "pretty", I promise!
But, hopefully, you find the info on these pages useful !
Please let me know if you have more links!
I eventually learned the hard way and thrashed my way thru the confusing and overwhelming mess of information out there.
Here are some starting pages to bring you up
to speed and at least show you my feeble attempt at creating a map of the
ever-changing maze of information.
This is one of the coolest thing in the world! More than a dozen "webrings" exist to link webpages exploring various aspects of breast cancer.
WebRing home page. A great place to start surfing. Search for "Breast Cancer" and more than a dozen "WebRings" show up. Each of the "WebRings" is a linked collection of up to a couple hundred webpages!
Breast cancer pins that look pretty cool (at least on his website). I know nothing about this guy but his pins are cool! "HERS (Hope Empowerment Renewal Support) Foundation" Flag Brooches not exactly breast-cancer related but pretty cool nonetheless.
CancerHelp UK: About Breast Cancer: Early Detection 98479. Breast Self-exams: Why, When, How VILLAGE LIFE NEWS: 'Friends for Life' Help Remember Breast Exams Breast changes
So many journals exist that I can't list them all here. But this is a start.
Cancer News Journals of the AMA Springer-Verlag Medical Journal Page cancer . -Cancer News on the Net- . cancer Breast Cancer In the News JCO News Releases
Community Breast Health Project (CBHP) An EXCELLENT support organization in Palo Alto, California.
This list would fill a phonebook if I included all the links I found. Someday I'll take the trouble to save pointers to all of the MANY MANY MANY community support groups that I've found.
The Women's Cancer Resource Center Bay Area Breast Cancer Network: Education, Support, Advocacy.
What role does heredity play in breast cancer? They say that only about 10% of women diagnosed with breast cancer have family history of breast cancer. But there's definately some genetic link. 10 years from now, we'll understand the link (I hope) and may understand how to intervene and prevent cancer (I REALLY hope). Read on....
USDSM Birth Defects Genetics Center Home Page FORCE: Facing Our Risk of Cancer Empowered
Breast Cancer Action
CancerHelp UK: Breast Cancer Menu CancerHelp UK: Breast Cancer Organisations NSW Breast Cancer Institute Home Page Yahoo! Regional:Countries:Australia:Health:Diseases and Conditions:Breast Cancer
Dealing with the insurance people is daunting at best. A NIGHTMARE at worst. Even with excellent insurance, the paperwork is overwhelming.
HomeArts: Breast Cancer -- Are You Covered?
Many women aren't screened. A few just don't bother. The vast majority don't have adequate health insurance.
Breast Cancer Screening Breast Cancer Screening Augusta Georgia: features@ugusta: Government seeks safe breast-cancer prevention 10/22/98 CancerHelp UK: Diet and Preventing Breast Cancer
womenCONNECT.com: women's news on business, career, money, politics & health
Ain't the Internet great? Lots of medical info is now online.
Doctor Koop's website Oncology.com website Healtheon/WebMD Medicalogic Medscape BreastCancerInfo.com Oncoloty.com Cancerpage.com Cancersource.com Cancerfacts.com WebMD/Lycos 10 questions to ask your doctor
The first thing I did after MJ's diagnosis was run to the bookstore and bought every book with the word "breast" and "cancer" in the title. I walked out with about 4 dozen books (really!) Someday, I have to go thru our bookshelf and capture the name / author of every book we own. But here's a start... (Warning: Amazon.com alone lists over 898 books on breast cancer! YIKES!)
Amazon Search for "breast cancer". Over 898 books! The Bookstore - Coping With Cancer Books of Interest Our Gift of Love Women share stories of coping, survival during Breast Cancer Awareness Month - 10/22/97 All Cancer books at Amazon.com The Complete Book of Breast Care
Unless you have a good "medical oncologist" with a great bedside manner, you'll be completely baffled by the plethora of options available. Each option has pros and cons. There's no one-size-fits-all treatment (yet).
Medscape Oncology Home Page
Journal of Clinical Oncology OncoLink: Breast Cancer - Treatment Options OncoLink Cancer News OncoLink: Breast Cancer - Treatment Options Selective Toxicity Amazon.com: A Glance: The Chemotherapy & Radiation Therapy Survival Guide Cancer Sites: Chemotherapy List of Chemotherapy Drugs A great place to consult for side effects. OncoLink Automated E-mail Discussion Group Subscriber: A - F Listing of Drug Therapies Approved in 1996 American Society of Clinical Oncology Chemosensitivity Testing CancerHelp UK: Chemotherapy Understanding Taxol: Information on Taxol, uses and side effects. The Cytoskeleton Cancer Sites: Breast Cancer OncoLink: A University of Pennsylvania Cancer Center Resource OncoLink Automated E-mail Discussion Group Subscriber: A - F NCI/PDQ Citation: Reduced morbidity from skeletal metastases in breast cancer patients during long-term bisphosphonate (APD) treatment FAQs 3 - After Breast Cancer & Metastasis Bisphosphonate Update 1997 ABSTRACT #530 -- "Long-term reduction of skeletal complications in breast cancer patients (pts) with osteolytic bone metastases receiving chemotherapy, by monthly 90 mg pamidronate UCSF Cancer Center - index page ASCO Abstract Search American Society of Clinical Oncologists is a GREAT source of cutting-edge information. Excite for Web Servers Search Results Site Map Medscape Medscape - Women's Health breast_cancer_decision_guide Breast Cancer Action NYSERNet BCIC: Other Sources of Medical Information and Support Welcome to Fightingcancer.com! The Cancer Survival ToolboxTM List of Chemo Drugs Cancer Sites: Chemotherapy ThirdAge - News - APRIL 9, 1998 - New Breast Cancer Drug Demands Tough Trade-Offs
Breast cancer - New perspectives can replace unrealistic fears: Lumpectomy vs. mastectomy
A rarely-addressed topic until recently. Many more studies need to be done to assess the effects of chemo on fertility.
Breast cancer in Young Women and Fertility
Pregnancy in Breast Cancer Patients Breast cancer and pregnancy Is It Safe for Women Who Have Had Breast Cancer to Become Pregnant? Concept Fertility Centre Homepage Infertility News Breast cancer and pregnancy MD Digests Effects of Chemotherapy on Fertility What are the side effects of Lupron? Lupron has been used in conjunction with some chemotherapy regimines to, in theory, preserve fertility. OB-GYN-L Messages for November, 1996: Re: Pregnancy after breast cancer Health: Pregnancy Safe After Breast Cancer NCI/PDQ Physician Statement: Breast cancer and pregnancy - Updated 07/97 Breast cancer during pregnancy: quantifying the risk of treatment delay. Perceived Concerns of Pregnant Women With Breast Cancer Treated With Chemotherapy Review Finds Research Lacking on Safety of Pregancy After Breast-Cancer Treatment Grand Rounds: Hormones and Breast Cancer Breast Care -- Menopause
Beware the fast-buck scam-artists who play off of cancer patients' desperation! Beware even more the sincere folk who really want to help but are selling little more than snake oil.
QuackWatch Home Page A comprehensive listing of the MANY quacks in the world. (Ok, again, I'm not a doctor! Some of the techniques this guy attacks might actually be good for you? Maybe, maybe not. Interesting reading but you'll have to decide for yourself, of course.)
Allexperts.com: Ask a question! Breast cancer Infiltrating Ductal Carcinoma CanceRX WVU Radiation Oncology other WEB SITES The Health Network cancerTrials: A service of the National Cancer Institute
Unless you have a local organization to answer questions, you'll probably be scared to death and completely befuddled about which way to turn. Check some of these links for support.
Yellow Stream - A Cancer Diary Breast Cancer Survivor's Club - index Sexual Effects: Physical and Psychological OncoLink: Information for Caregivers Breast Cancer Stories - Index Page Breast Cancer at 27! Breast Cancer -- Contents Breast Cancer ACTION Nova Scotia
These organizations are listed in no particular order. National Alliance of Breast Cancer Organizations (NABCO) Join The Fight against Breast Cancer The Breast Health Institute Komen.Org A great start for info gathering! ww.patientcenters.com -- Welcome to Patient-Centered Guides Breast Cancer Center cancerTrials: A service of the National Cancer Institute National Cancer Institute Homepage Mayo Clinic Health Oasis American Cancer Society The National Center for Biotechnology Information NHMRC National Breast Cancer Centre The National Center for Biotechnology Information
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Yes, it DOES happen. About 1300 men are diagnosed each year (according to ACS)! Did you know that Richard Roundtree (the actor who played Shaft) is a breast cancer survivor!
The Breast Cancer Fund discusses Male Breast Cancer (This one is a must read!) Male Breast Cancer, Information Center University of Iowa article on Male Breast Cancer. Go Ask Alice info on Male/Female breast cancer differences The Memorial Sloan-Kettering Cancer Center is planning a national registry for male breast cancer survivors:www.mskcc.org. The Memorial Sloan-Kettering Cancer Center has lots of info available on male breast cancer:
Male Breast Cancer Index Male Breast Cancer Overview Male Breast Cancer Treatment Male Breast Cancer Diagnosis Ashkenazi Jews Have Gene Defect that Raises Inherited Breast Cancer RiskOverview
I'll add a bunch of links soon. I promise!
National Breast Cancer Coalition CABCO: California Breast Cancer Organizations California Women's Law Center Older Women's League Medical Board of California Smart Voter War on Cancer Organization An "activist" group with an extremely good message! Sign the War on Cancer petition
NCI's Breast Cancer - Quality of Life and Managing Your Health
Send me more links.
If you have anything that I missed, please send links! Any help you could
provide would be appreciated....